I have included one or two suggestions that involve some cost but I would strongly advise you consider them.
*As at 01/04/2023
Dental Care Services available if you can no longer attend your dental practice
Community Dental Care.
This is secondary dental care for patients who cannot be seen in general practice.
This covers a number of conditions including dementia.
Patients are seen at an NHS Hospital, specialist health centres or mobile clinics. Or the dentists working in the community comes to your home to provide care.
Details of the local community dental service can be obtained from the the local primary care organisation (England), the local health board (Wales) the dental practice board (National Services Scotland) or the local trust (Northern Ireland).
Domiciliary Dental Care
This is where a general dental practitioner has an NHS contract to visit patients in their own home when they cannot visit the practice in person.
This is not available throughout the UK.
Residential Healthcare Funding
For care fees advice, there is a professional body called SOLLA, The Society of Later Life Advisers. The SOLLA website contains more detailed advice about individual situations together with a section to locate a local adviser.
Local Authority Financial Assessment
The means tested limit for capital is £23,250. So if a person has any capital of more than £23,250 they
have to pay for their own care.
Capital means property as well. There is an exception and that is if somebody else lives in the property. A spouse at any age or it can be a relative who is over 60 or it can be a disabled relative of early age.
There are two means tested limits the second is £14,250. If someone has got between £14,250
and £23,250, then they will get some contribution from the local authority, but not a full contribution.
If a person is under the second means tested limit, the council will pay what they refer to as a tariff. That is the amount if the person was in their local authority owned residential care home. If the person's savings are below £14,250, they would qualify for the tariff amount which varies with each local authority. If the person wants to stay in a care home which is dearer than the tariff they cannot use their own £14,250 fund, it has to be funded by a third-party (family or friends)
NHS Continuing Healthcare Funding
NHS continuing healthcare is an ongoing package of health and social care that is arranged and funded solely by the NHS where an individual is found to have a primary health need. Such care is provided to an individual aged 18 or over to meet needs that have arisen as a result of disability, accident or illness.
NHS Continuing Healthcare pays for help and care at home or in a care home for people who need a lot of help because of their health. The NHS pays for this.
Firstly you need to ask your social worker, your family doctor, a nurse or another health worker like an occupational therapist to submit an NHS continuing healthcare checklist and then this will lead to an assessment by a multi disciplinary team.
The process is difficult to negotiate and is not particularly suited to people who have dementia alone.
Guidance is provided that sets out the principles and processes of the national framework for NHS continuing healthcare in https://www.gov.uk/government/publications/national-framework-for-nhs-continuing-healthcare-and-nhs-funded-nursing-care
* As at 01/04/2023
Personally I would suggest you contact:-
Age UK (http://ageuk.org.uk ) who completed the attendance allowance and blue badge form for us.
Alzheimer's Society ( alzheimers.org.uk )
Carers UK ( carersuk.org )
Dementia UK ( dementiauk.org )
Dementia UK is the specialist dementia nursing charity. Their nurses, known as Admiral Nurses, provide free, life-changing support and advice on a continuing basis to all those affected by dementia through their UK network of over 450 Admiral Nurses.
Your County Council and Local Council will also be able to guide you towards charities in your area.
For Dementia Charities and services local to you simply search (on Google):-
Local dementia charities near me, or
Local dementia services near me
For me, as a full time carer, the "carers only" group stands out.
Carers groups are where you can share your own experiences, challenges and occasionally your deepest thoughts in a confidential and safe environment.
Not to mention those little and often not so little gems of information.
One National Carers Group that meets regularly is Dementia Club UK
Unfair Treatment Advice
If you feel that you have been unfairly treated in a shop, cafe or restaurant because you have dementia contact:-
Equality Advisory Support Service (EASS)
This is a free service that advises and assists individuals on issues relating to equality and human rights, across England, Scotland and Wales. EASS provides information and advice on Discrimination and Human Rights and is not a legal advice service. The EASS provides information about the Equality Act 2010 and the Human Rights Act 1998. They recommend you consult a lawyer if you want legal advice, wish to take legal action or want advice on the merits of your case.
The advice line is available on Freephone 0808 800 0082 Monday to Friday 9;00am to 7:00pm and Saturday 10:00am to 2:00pm.
Alternatively use the contact form https://www.equalityadvisoryservice.com/app/ask
If unfortunately you find that you need to complain about the NHS or if you find it difficult to understand your care and support or find it hard to speak up, there are people who can act as a spokesperson for you.
The Independent Heath Complaints Advocacy Service can help individuals make a complaint about a National Health Service (NHS), which covers all NHS funded treatment, this includes NHS hospitals, GP's, Ambulance Services, District Nurses, Mental Health Services, Dentists, Pharmacists or Opticians.
There are charities where a trained and vetted volunteer will come to your home and sit with the person.
Or perhaps take them out for an hour or two, just the two of them to a garden center of cafe or perhaps to a group of people with similar conditions which in our case was singing. Singing is often suggested because as well as joining in a group or simply listening to music helps with both social and mental stimulation.
Several Charities and Local Councils run Day-Care Centres where the person with dementia can get a change of company and often activities (and lunch) while carers can have half or a full day of respite. Search locally, some are paid for and some are free.